ASCA attends Parliamentary Friends of People living with Rare Diseases event in Canberra
On 18th October 2019, we had the privilege of accepting an invitation from partner organisation Rare Voices Australia to attend an event at Parliament in Canberra. The event was to see the launch of the report, ‘Disability & Rare Disease: Towards person-centered Care for Australians with Rare Disease. RVA’s CEO, Nicole Millis also provided an […]
ASCA attends the 14th Thalassaemia and Sickle Cell Conference (ASCAT)
On 19th October 2019, ASCA Executive Director Agnes and the Co-Founder of the organisation Preston flew to London to attend the 14th ASCAT conference. The ASACT Conference is the largest Sickle Cell Disease (SCD) conference in Europe which showcases the latest advances in diagnosis, treatment and emerging fields in haemoglobinopathies. It is also an opportunity […]