ASCA meets Federal Labor Leader for Willis

On 20th November, ASCA had an opportunity to meet Hon Peter Khalil, Federal Labor Leader for Willis. This meeting was set for us to lobby Federal Labor Leader for Willis to advocate for better services for people living with SCD on our behalf. The meeting was very successful and Hon Khalil has promised to help us raise awareness about this disease. We hope to make an announcement on how this will be done in the coming weeks. It was very nice to actually know that Hon Khalil understands this disease very well. 

ASCA meets the Haematology team at Monash health

One of the ways we like knowing what affects the sickle cell patients is by interacting with the doctors who treat these patients. The doctors and nurses treating these patients can give us valuable information that can advance our knowledge on which direction to follow in meeting our objectives. Hence ASCA Executive Director met with the team treating the SCD patients at Monash to not only build a relationship with this hospital but also to ask how we can help this centre. It was nice to meet the two haematologists, the Nurse Coordinator and the social worker. We are happy that we will have a continued relationship going forward, to connect with patients being treated at this centre.

 

ASCA attends the Chartered Accountants Connections Networking Event

On 18th November, we were delighted to accept an invitation to the Chartered Accountants Connections Networking Event. It was nice to talk to the corporate world professionals and other not for profit organisations who attended the event. We took this opportunity to make connections and uphold our objectives. It was nice to connect with a few people who promised to work with us in the future.

ASCA represents Sickle Cell patients at the sickle cell round table

13th November became a memorable day for us. After over one year of advocating for National Sickle Cell Disease treatment guidelines,  the Haematologists treating SCD patients across the country have started the process to formulate these guidelines. Over the past few months, we have managed to highlight the need and absence of local consensus treatment guidelines for Sickle Cell patients in Australia and we drove the implementation of this initiative.

On 13th November, we were invited to the sickle cell disease round table here in Melbourne where we represented our members and the sickle cell disease patients in Australia. We strongly believe that had we not highlighted this need in that past year, it was going to take clinicians a while before they could start this process. We would like to thank all clinicians who are part of this round table. We understand it is a process but we are very confident it will be accomplished.