A letter from Hon Greg Hunt Federal Minister of Health
We are so delighted that Hon Greg Hunt Federal Minister of Health replied to our letter where we asked his office what they were doing to improve services for sickle cell patients in Australia. We acknowledge that the Federal Health Office is working towards some better services for SCD patients in Australia. Part of the […]
Sickle Cell presentation at RMIT
One of our top objective is to raise awareness about sickle cell disease that is considered a rare disease in Australia. Our area of focus is firstly to the people who are at risk of having the sickle cell trait. We would like to see that every individual who is at risk of having this […]
ASCA meets the Haematology team at Monash health
One of the ways we like knowing what affects the sickle cell patients is by interacting with the doctors who treat these patients. The doctors and nurses treating these patients can give us valuable information that can advance our knowledge on which direction to follow in meeting our objectives. Hence ASCA Executive Director met with […]
ASCA meets Federal Labor Leader for Willis
On 20th November, ASCA had an opportunity to meet Hon Peter Khalil, Federal Labor Leader for Willis. This meeting was set for us to lobby Federal Labor Leader for Willis to advocate for better services for people living with SCD on our behalf. The meeting was very successful and Hon Khalil has promised to help […]
ASCA attends the Chartered Accountants Connections Networking Event
On 18th November, we were delighted to accept an invitation to the Chartered Accountants Connections Networking Event. It was nice to talk to the corporate world professionals and other not for profit organisations who attended the event. We took this opportunity to make connections and uphold our objectives. It was nice to connect with a […]
ASCA represents Sickle Cell patients at the sickle cell round table
13th November became a memorable day for us. After over one year of advocating for National Sickle Cell Disease treatment guidelines, the Haematologists treating SCD patients across the country have started the process to formulate these guidelines. Over the past few months, we have managed to highlight the need and absence of local consensus treatment […]
ASCA attends Parliamentary Friends of People living with Rare Diseases event in Canberra
On 18th October 2019, we had the privilege of accepting an invitation from partner organisation Rare Voices Australia to attend an event at Parliament in Canberra. The event was to see the launch of the report, ‘Disability & Rare Disease: Towards person-centered Care for Australians with Rare Disease. RVA’s CEO, Nicole Millis also provided an […]
ASCA attends the 14th Thalassaemia and Sickle Cell Conference (ASCAT)
On 19th October 2019, ASCA Executive Director Agnes and the Co-Founder of the organisation Preston flew to London to attend the 14th ASCAT conference. The ASACT Conference is the largest Sickle Cell Disease (SCD) conference in Europe which showcases the latest advances in diagnosis, treatment and emerging fields in haemoglobinopathies. It is also an opportunity […]
ASCA launches the first ever sickle cell disease support meetings
25th September 2019, we celebrated yet another milestone in our organisation. We launched the first-ever sickle cell disease support meetings in Australia. These meetings were part of our promises at the official launch in June 2019. ASCA has members that are affected at different levels of this disease. We have patients that are directly affected […]
Sickle Cell Advocacy at Pascoe Vale RSL Club
On 26th August 2019, ASCA was invited to the Pascoe Vale RSL Club to give a talk about sickle cell disease in Australia. This opportunity availed to us made it possible to accomplish what our association is meant to be doing. With a room of about 20 people, ASCA Executive Director Agnes and the Support […]