◦ Have hobbies and extramural activities that bring you joy and relaxation.
◦ Stay in tune with your body, and if you feel unwell at school, communicate with a trusted adult, teacher, or friend to get the help you need.
◦ Should you get injured at school, be sure the school nurse or whoever is administering first aid knows not to apply ice packs, which could induce a pain crisis.
◦ Keep communication channels open with your teachers so they are aware of when you are feeling unwell, fatigued, or in pain, need extensions to complete homework and assignments, or need assistance catching up with work you may have missed because of hospital admissions, medical appointments, transfusions, sick days, etc.
◦ Make sure to get a daily dose of vitamin D and physical exercise.
◦ With the help of your parents, consider going for counselling with your school well-being-coordinator or a psychologist or counsellor if you find you are struggling to cope and need some extra emotional support and somewhere safe to share and talk through your feelings and some of the challenges that come with living with SCD.
◦ Push yourself to do your best in whatever you do, but don’t push yourself too hard. Learn to tune into your body. If you need to take a break in the well-being area of your school, go home early, or stay home from school for a day, do so. Otherwise, your body will make you do so later on.
◦ Be kind to yourself. If you’re struggling, don’t beat yourself up about it. Go out there and be the best version of yourself, my fellow young warriors!