Sickle Cell Disease Stories

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Peter Leos – Living with Sickle Cell Anaemia

Born: In the 1960s, Melbourne Australia to Greek immigrant parents.
Studied: Monash University (Bachelor of Economics); University of Melbourne (Diploma in Education).

I was diagnosed with Sickle Cell Anaemia in 1963 at the Royal Children’s Hospital when I was 3 years old. My first awareness of SC pain was pain in the joints of my fingers as a 3 year old. This developed into more severe joint pain as I got older and became a teenager (usually in the arms or legs and in later years, in the lower back).

 

Yemi Moses – Living with Sickle Cell Anaemia

My name is Yemi Moses. My parents had seven children; I was their fourth child, and by the time they had had their seventh child – four of us had been diagnosed with Sickle Cell disease.

As you may know, SCD can be a debilitating disease. When my older sister was born with SCD in 1972, the doctors’ knowledge of this disease was much more limited than it is today. So, when my sister was born, the doctors let my parents know she would not live past the age of 18. And my parents had three more of us born with sickle cell after that… I cannot even imagine how their strength and fear were entangled. But strength constantly overcame. As I grew up with sickle cell, I remember having minor episodes. 

Sophia Anna – Adult living with Sickle Cell Anaemia

Sophia Anna is an invisible illness advocate, ASCA supporter and health student.  Sophia Anna lives with Sickle Cell Anemia and Avascular Necrosis.  She is the founder of The Sick Sexy, a youtube platform which aims to reduce the stigma around disability and invisible illness. 
Sophia Anna is an invisible illness advocate, ASCA supporter and health student.  Sophia Anna lives with Sickle Cell Anemia and Avascular Necrosis.  She is the founder of The Sick Sexy, a youtube platform which aims to reduce the stigma around disability and invisible illness. 
 
 

Natasha Kashito – Adult living with Sickle Cell Anaemia

I’m Natasha Kashito age 28, I was diagnosed with SCD at 3 months old, type ss. I have 2 siblings one of them is a warrior too. I was in and out of hospital most of my younger years and I missed out on school a lot, I used to be admitted for 2-4 weeks at a time depending on how severe the crisis was. When I was in grade 7 it was so bad that I used to carry an oxygen tank with me to school. I didn’t know what I had so I let people’s ridicule get to me, the bullying was so intense I tried to commit suicide twice. 

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