On 17th August we continued our mission. This time we were at the African Australian communities consultation regarding Strengthening African Communities and Capacity Building in Preventing Family Violence. This is an opportunity for us to also discuss the need to have health discussions in our families. This topic is often avoided and rare in some cultures. We are breaking the barriers and saying it’s ok to talk about difficult topics. We will be encouraged to test for the sickle cell gene and offered information for people affected / from risky areas.
Australian Sickle Cell Advocacy Inc (ASCA) is a patient advocacy group supporting the rights of people living with Sickle Cell Disease (SCD) as they navigate the healthcare system in Australia. ASCA is a non-profit organisation started in 2014 and officially registered in October 2018. An advocacy group formed to fill the gap of highlighting the rising numbers of sickle cell disease in Australia. Although rare in some part of the world like Australia, sickle cell disease is affecting a lot of people.