Hon Maria Vamvakinou officially launched the official opening of our association on 19th June 2019. On 24th July 2019, Hon Vamvakinou reported this event in Parliament. The video when Hon Maria was presenting is here: https://youtu.be/FzSKSpWsXVc
Australian Sickle Cell Advocacy Inc (ASCA) is a patient advocacy group supporting the rights of people living with Sickle Cell Disease (SCD) as they navigate the healthcare system in Australia. ASCA is a non-profit organisation started in 2014 and officially registered in October 2018. An advocacy group formed to fill the gap of highlighting the rising numbers of sickle cell disease in Australia. Although rare in some part of the world like Australia, sickle cell disease is affecting a lot of people.