info@aussicklecelladvocacy.org

Australian Sickle Cell Advocacy Inc.

info@aussicklecelladvocacy.org
1300 148 824
Australian Sickle Cell Advocacy Inc.
Supporting People Living With Sickle Cell Disease In Australia And Beyond

13th November became a memorable day for us. After over one year of advocating for National Sickle Cell Disease treatment guidelines,  the Haematologists treating SCD patients across the country have started the process to formulate these guidelines. Over the past few months, we have managed to highlight the need and absence of local consensus treatment guidelines for Sickle Cell patients in Australia and we drove the implementation of this initiative.

On 13th November, we were invited to the sickle cell disease round table here in Melbourne where we represented our members and the sickle cell disease patients in Australia. We strongly believe that had we not highlighted this need in that past year, it was going to take clinicians a while before they could start this process. We would like to thank all clinicians who are part of this round table. We understand it is a process but we are very confident it will be accomplished.