ASCA launched the first advocacy group solely dedicated to supporting people living with sickle cell disease in Australia. The launch was held at the Royal Children’s Hospital. It was officially opened by Hon maria Vamvakinou, the Federal Member of Parliament for Calwell. The event was sponsored by CSL Ltd and was privileged to have Vice President for research Mr. Micheal Wilson attend the event. Over 100 people attended the event, including representatives from The Australian Red Cross Blood Service, Rare Voices, Novartis Australia, Mr Mwese, a representative for the Zambian High Commissioner to Australia Mr Frank Bwalya, Thalassaemia, and Sickle Cell Australia. The event was a huge success and we would like to thank everyone who came to support us.
Australian Sickle Cell Advocacy Inc (ASCA) is a patient advocacy group supporting the rights of people living with Sickle Cell Disease (SCD) as they navigate the healthcare system in Australia. ASCA is a non-profit organisation started in 2014 and officially registered in October 2018. An advocacy group formed to fill the gap of highlighting the rising numbers of sickle cell disease in Australia. Although rare in some part of the world like Australia, sickle cell disease is affecting a lot of people.