ASCA aims to continuously raise awareness, provide information valuable to patients, and provide support networks. Together with affected communities, we aim to engage research scientist to invest in Sickle cell research that will push for the discovery of better treatment options and a cure available for all those who are affected. Meet Our team.
Agnes is the founder of Australian Sickle Cell Advocacy. In 2009 their youngest child was diagnosed with Sickle Cell Disease (SCD). In 2014, Agnes and Preston started the SCD Facebook page to support other people affected by this disease. The group was formally registered as a not for profit association in October 2018. Agnes is a Registered Nurse after returning to University in 2012 to specifically study nursing so that she could understand SCD and what their child was going through. Agnes also has a bachelor’s degree in Business with experiences in the taxation and banking industries. Agnes’ passion is to support programs and initiatives that enhance people from disadvantaged backgrounds. She also volunteers her time to different projects which raise funds to support scientific research. In her spare time, Agnes enjoys watching movies, listening to music and traveling.
Preston is a founder as well as Grants Coordinator for Australian Sickle Cell Advocacy. In 2009 their youngest child was diagnosed with Sickle Cell Disease (SCD). In 2014, Preston and Agnes started the SCD Facebook page to support other people affected by this disease. The group was formally registered as a not for profit association in October 2018. Preston’s professional background is in the fields of Product Development, Aged Care and Mining has given him diverse exposure to the disciplines of Finance, Procurement, Project Management, and General Management. He is a qualified accountant and a Mining Engineer. Preston’s passion to engage in community work to support not profit initiatives. In his spare time Preston like fishing, watching movies and collecting music.
Joseph is a Fellow of the Association of Chartered Certified Accountants
(ACCA) in the United Kingdom, where he served on various governing boards (the International Assembly and the Global Council from 2014-2018). He is also an International Speaker and has delivered speeches and lecturers in various cities across four continents. He has held senior management positions at three of the Big4 accounting firms and is currently a Director at Deloitte Australia. He is passionate about climate change and sustainability. He has a background in medical sciences and assisted in research on the role of antioxidants (e.g. Vitamin C) in the management of Sickle cell anaemia. He lost a few former classmates to the Sickle Cell disease and wants to make an
impact by raising awareness on the disease.
Dr Evans-Galea is a scientist, executive and entrepreneur and Executive Director of the Industry Mentoring Network in STEM with the Australian Academy of Technology and Engineering, and co-founder and CEO of Women in STEMM Australia. She has led international research programs in cell and gene therapy for genetic disease at world-leading organisations in the United States and Australia, and has received numerous awards for her research and leadership. She is currently the Australasia Associate Editor on the Editorial Board with Gene Therapy-Springer Nature. Dr Evans-Galea is also a renowned
advocate for STEMM research, education and innovation, and has served with advisory groups in State and Federal government, and communicates on a range of science-related topics via social and mainstream media. An independent consultant, speaker, editor and peer reviewer, she remains actively engaged across multiple professional sectors in the broader STEMM ecosystem.
Dr Kalumba is a fellow of Royal Australasian College of Physicians, Consultant Paediatrician and a Clinical Haematologist. He has broad experience in all paediatric conditions including neonatology, growth and development, asthma, infections, eczema, behavioural problems including ADHD & Autism Spectrum Disorders, and in particular specialized in blood disorders. Dr Kalumba trained as a paediatrician at the Royal Children’s Hospital in Melbourne, in addition to his previous paediatric training including Fellowship with the College of Medicine of South Africa. He undertook further training in Haematology in Melbourne at the Royal Children’s Hospital, Peter Mac Cancer Centre and Melbourne Pathology, including Laboratory Medicine. He is accredited with Cabrini, Jessie McPherson Private Hospital, Waverly Private Hospital, Knox Private Hospital, Peninsula Private Hospital and The Bays Private Hospital. He also works as visiting specialist in numerous hospitals across Australia. Dr Kalumba had also practised paediatrics in various countries including D.R Congo, Zambia, Lesotho and South Africa.
Sarah is a published research scientist with a doctorate in cancer biology. Following her post-doctoral studies, Sarah moved into he pharmaceutical industry where she has worked in medical roles across 3 global companies (GSK, Novartis and Pierre Fabre) covering range of disease states,including; Melanoma, Renal Cell Carcinoma, Chronic Lymphocytic Leukaemia, Colorectal Cancer, Breast Cancer and Neuroendocrine Tumours, to help to bring new treatments to market. Sarah is passionate about communicating science to the broader community to highlight the importance of research, and drive
investment into areas of need. She has worked as a social media liaison at several national and international conferences, as well as doing communications and public relations work in her previous research roles, and has won several awards for her scientic presentations. Sarah is currently working as a Medical Advisor for Pierre Fabre, a private company run by a government-recognized public-interest foundation who invests heavily in projects to help fight SCD.
Bright migrated to Australia from Zambia in 2002. He holds a Masters degree in Public Health (Health economics major) from Monash University, a Masters Degree in International Finance from Deakin University, and a Bachelor of Business in Accounting and E-Commerce from Charles Sturt University. Bright is also the Chairman / Founder of Carers for Africa. Carers for Africa works to
improve access to health services for disadvantaged persons from diverse
backgrounds experiencing health issues, family and domestic violence and unemployment.
Hsiao is a postdoctoral researcher with expertise in epigenetics and gene regulation, with an emphasis on regulation of globin gene expression and disorders of haemoglobin. Hsiao completed her doctoral studies in gene therapy for Thalassaemia and post-doctoral tudies at the Weather all Institute of Molecular Medicine at Oxford University. During this time, she investigated the function of a protein (ATRX) important for expression of the a-globin gene at the MRC Molecular. Haematology Unit under the guidance of Prof. Doug Higgs. Hsiao continues to study ATRX at Monash University, and the role of
this protein in paediatric brain tumours.
Dr Anthea Greenway is a Paediatric Haematologist at The Royal Children’s Hospital and Monash Medical Centre in Melbourne. She completed a clinical fellowship in SCD at Duke University Medical Centre, North Carolina in 2010. Dr Greenway is the Clinical Lead of the Sickle cell and Haemoglobinopathies service, the clinical lead of the Apheresis service, and chair of the Apheresis Committee at The Royal Children’s Hospital.
Nathalie is passionate about Technology and its ability to simplify and innovate how humans interact and operate every day. Her roles in Technology have been across the whole Systems Development life cycle, and currently as a Business Analyst focusing on Technology governance, new ways of working, workflow visualization and standards, with the aim to improve quality and align work to business initiatives. Nathalie is a mother of two and is passionate about giving back to the community. In her spare time Natalie enjoys sports like running, viewing art galleries and travelling.
Christinah comes from a customer service background. She is a mother of four boys and one grandchild. Her passion is to help people from disadvantaged backgrounds. She has always dedication her time to volunteer in events to assist with scientific research. She had a personal experience with acute anaemia (a symptom also common to SCD), when she was admitted in hospital. During her free time, Christinah enjoys spending time with family and volunteering at church activities.
Peter is a secondary school teacher who was born in 1960 in Melbourne Australia to Greek immigrant parents, and diagnosed with SCD in 1963 at the Royal Children’s Hospital (RCH). His first awareness of SCD related pain was in the joints of his fingers at 3 year old, which developed into more severe joint pain as he became a teenager (usually in the arms or legs and in later
years, in the lower back). For 50 years the standard treatment was pain relief, blood transfusions and staying hydrated. These treatments addressed the symptoms of SCD pain and the anaemia, but there was no preventative treatment other than; avoiding de-hydration, over exertion or infections. He had weekly or fortnightly appointments at the Haematology clinic at
the RCH where a blood test and haemoglobin level would determine if he went home after the appointment, or was admitted into hospital for a transfusion. In 1978 when he was 18, he was transferred across to the Royal Melbourne Hospital. In 2011 he started apheresis (red cell exchange) treatment.
Brian is an Information Technology student with a passion about innovation. He is very creative and love coming up with new ideas that can change the way we live. In his spare time, Brian enjoys music, soccer and socialising.
Mayase is Senior Business Analyst and Iteration Manager specialising in IT consulting and software delivery. She has led distributed software delivery teams across Australia, China and India. Her skills include; agile project management, resource is planning, agile business analysis, change management, product thinking, network administration, domains and career development coaching. She volunteers her time to initiatives that progress her passion for diversity, making education accessible to every child and increasing the participation of women in Science, Technology, Engineering and Mathematics (STEM).
Lou has a passion for supporting not for profit initiatives. His professional background is as a Site Inventory Specialists. Lou is the father of four boys, and in his spare time he likes using his tools to do a bit of handy work, and going fishing.
Titilope is an experienced Registered Nurse with a demonstrated history of working in the hospital & health care industry. Titi has a strong health care services professional with a Bachelor’s Degree in Nursing from the University of South Australia. Titi is an Ambassador for Peace and has skills in Public Speaking, Writer and Publisher: Skilled in Non-fiction Writing.
Mercy is a Registered Nurse with a passion for supporting not for profit initiatives. She is a mother of three, and enjoys music and watching movies in her spare time.