Sickle cell disease In Australia
Sickle cell disease is not common and rare in Australia, many people are not aware of it. The Haemoglobinopathy Registry (HbR) through the Public Health and Preventative Medicine at Monash University have a program to collect data on the prevalence of sickle cell disease in Australia. HbR is a national register of patients in Australia with blood disorders which include SCD.
Hence one of our objectives is to lobby for increased funding to support the expansion of the Haemoglobinopathy Registry. To find out more about the works of the HbR, please refer to the link here (photo credit https://fscdr.org)