Australian Sickle Cell Advocacy Inc (ASCA) is a not-for-profit organisation supporting people living with sickle cell disease (SCD) in Australia. It is the peak body in Australia looking out for people affected by this disease.
ASCA started in 2014 and formally registered in October 2018. Our head office is based in Melbourne with chapters or representatives in other States or Territories across Australia.
Raise awareness of this condition that is considered a rare disease in Australia.
Ensure that all essential medications used to manage SCD are accessible for all affected individuals.
Identify essential services that will benefit affected people.
Engage with policymakers to ensure SCD receives recognition like other chronic conditions in Australia.
Ensure that universal SCD screening is available in Australia
Ensure that all healthcare workers are aware of the disease, these and more are reasons why we started this initiative.
Raise awareness of this condition that is considered a rare disease in Australia.
Ensure that universal SCD screening is available in Australia
Engage with policymakers to ensure SCD receives recognition like other chronic conditions in Australia.
Identify essential services that will benefit affected people.
Ensure that all essential medications used to manage SCD are accessible for all affected individuals.
Ensure that all healthcare workers are aware of the disease, these and more are reasons why we started this initiative.
Raise awareness of this condition that is considered a rare disease in Australia.
Identify essential services that will benefit affected people.
Ensure that universal SCD screening is available in Australia
Ensure that all essential medications used to manage SCD are accessible for all affected individuals.
Engage with policymakers to ensure SCD receives recognition like other chronic conditions in Australia.
Ensure that all healthcare workers are aware of the disease, these and more are reasons why we started this initiative.
Join us as we raise our voices because “Together we will rise”
(ASCA) is a patient advocacy group supporting the rights of people living with Sickle Cell Disease (SCD) as they navigate the healthcare system in Australia. ASCA is a non-profit organisation started in 2014 and officially registered in October 2018. An advocacy group formed to fill the gap of highlighting the rising numbers of sickle cell disease in Australia. Although rare in some part of the world like Australia, sickle cell disease is affecting a lot of people.