Australian Sickle Cell Advocacy Inc (ASCA) is a not-for-profit organisation supporting people living with sickle cell disease (SCD) in Australia. It is Australia’s first Sickle Cell Advocacy group advocating for the rights of those living with Sickle Cell Disease in Australia as well as the peak body in Australia looking out for people affected by this disease. ASCA started in 2014 and formally registered in October 2018. Our head office is based in Melbourne with chapters or representatives in other States or Territories across Australia.

Our Services

Community Outreach

ASCA will provide community sickle cell disease awareness information sessions to different multicultural communities. This outreach program will be beneficial for at-risk communities. Information sessions will also be provided to different educational institutions like TAFE / Colleges / Universities. These sessions will be targeting Nursing and Medical Students so that they have an understanding SCD.

Family Support Networks

These ASCA funded programs will allow families affected to share life with people going through similar situations. These will be quarterly informal meetings between different people affected sharing snacks / drinks while discussing issues affecting these community of people. Programs commence in late August 2019.

Peer to Peer Support Programs

These programs are similar to family support networks, however, they are specifically for people with SCD. These programs will be run by ASCA with the help of treating hospitals to give an opportunity for people affected to engage one on one or between different ages and tackle issues that only people that are affected go through. Strict policies/ procedures and Insurance will be in place.

Sickle Cell Disease Awareness

ASCA will continue to highlight the existence of SCD in Australia. Our aim is for everyone from risk areas to get tested for them to know if they have the sickle cell trait. Knowing the sickle cell status will help make proactive decisons.

Provide Resources and Information

ASCA has partnered with international organisations to bring advanced resources and information on sickle cell disease. With the permission of different hospitals, ASCA will provide printed materials to hand out to patients / clinicians for easy understanding of this condition. Information will be very beneficial for remote hospitals / centers as this disease is considered rare in Australia.

Advocate for Scientific Research

Currently SCD is considered a rare disease in Australia and as such there are no known scientific research programs running as there are no funds directed to this disease. Hence ASCA will continue reaching out to Australian Research Scientists to start researching other curative / management options for SCD.

ASCA Events

Second Australian Sickle Cell Scientific Conference

Health Equity for All

The importance of Newborn Screening in Health Management

2nd Australian Sickle Cell Scientific Conference by Australian Sickle Cell Advocacy Inc. is conference which aims to provide relevant information and resources to patients/caretakers, increase awareness and highlight strategic importance for treatment.

The main theme for this conference is to highlight why Health Equity is essential even for the unborn children when we focus on Newborn Screening for Sickle Cell Disease to be introduced in Australia. The 2nd Australian Sickle Cell Scientific Conference focuses upon increased awareness among all stakeholders about the disease, and data collection for national surveillance database. It also proposes to change the face of sickle cell disease in Australia by having deliberate discussions like this. We have seen the impact this has done in the past four years since our organisation was born.

This is a one day event which invites leading speakers for conference who will highlight strategic importance about dealing with sickle cell disease. As per theme of 2nd Australian Sickle Cell Scientific Conference, health equality is for all where importance of newborn screening in health management is emphasised.

Support Our Cause

Become a Member
  • Become an ASCA member to get all the latest information on Sickle Cell Disease in Australia and other parts of the world.
  • You will be the voice for people affected by this condition by having a say through your voting rights at our general meeting.
  • Get the latest news and updates through our quarterly newsletters and routine updates.
  • Having created the first-ever SCD support group in Australia, our primary objective is to ensure that we have our members supported.
  • Join us for routine catch-ups with other families going through similar challenges. We cherish our team activities and we would like you to be on board.
  • Have your say and identify gaps affecting people living with sickle cell disease. We are registered in NSW, QLD, SA, VIC and WA.

Register to join

Support Our Work
  • We are a private not for profit organisation raising awareness about Sickle Cell Disease in Australia.
  • We are also supporting people affected by this condition considered rare in Australia.
  • We do this by providing information and educational materials.
  • We are also meeting different multicultural groups to raise awareness.
  • We also lobby government to improve services for communities affected by this genetic disorder.
  • We are advocating for more scientific research and clinical trials to have curative options for all.
  • We are a fully registered charity with a deductible gift recipient certificate.
  • Every financial support you give us is Tax deductible.
  • Thank you for your support.

Donate to ASCA

Donate Blood
  • Sickle Cell Disease is mainly treated by targeting the symptoms or complications that come with living with this disease.
  • With pharmaceutical treatment only limited to one drug at the moment in Australia, blood transfusion is one the most successful treatment options to manage this disease.
  • Regular blood transfusions or routine red cell exchange can only become possible with the help from blood donors.
  • Support people living with Sickle Cell Disease by donating blood.
  • With every blood donation, you are saving three lives.
  • Make an appointment to donate today.
  • Follow the link below.
  • Thank you for your support.

Donate Blood

Recognised by the Federal Minister for Health

Hon Greg Hunt September 2020 SCD Message

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