Primary Objectives
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Community outreach
ASCA will provide community sickle cell disease awareness information sessions to different multicultural communities. This outreach program will be beneficial for at-risk communities. Information sessions will also be provided to different educational institutions like TAFE / Colleges / Universities. These sessions will be targeting Nursing and Medical Students so that they have an understanding SCD.
Peer to peer support programs
These programs are similar to family support networks, however, they are specifically for people with Sickle Cell Disease. These programs will be run by ASCA with the help of treating hospitals to give an opportunity for people affected to engage one on one or between different ages and tackle issues that only people that are affected go through. Strict policies/ procedures and Insurance will be in place.
Provide resources and information
ASCA has partnered with international organisations to bring advanced resources and information on sickle cell disease. With the permission of different hospitals, ASCA will provide printed materials to hand out to patients / clinicians for easy understanding of this condition. Information will be very beneficial for remote hospitals / centers as this disease is considered rare in Australia.
Family Support Networks
These ASCA funded programs will allow families affected to share life with people going through similar situations. These will be quarterly informal meetings between different people affected sharing snacks / drinks while discussing issues affecting these community of people. Programs commence in late August 2019.
Sickle Cell Disease Awareness
ASCA will continue to highlight the existence of Sickle Cell Disease in Australia. Our aim is for everyone from risk areas to get tested for them to know if they have the sickle cell trait. Knowing the sickle cell status will help make proactive decisions.
Advocate for Scientific research
Currently Sickle Cell Disease is considered a rare disease in Australia and as such there are no known scientific research programs running as there are no funds directed to this disease. Hence ASCA will continue reaching out to Australian Research Scientists to start researching other curative / management options for SCD.
For information regarding COVID-19 Email us on covid19@aussicklecelladvocacy.org
Support Our Cause
Become a Member
- Become an ASCA member to get all the latest information on Sickle Cell Disease in Australia and other parts of the world.
- You will be the voice for people affected by this condition by having a say through your voting rights at our general meeting.
- Get the latest news and updates through our quarterly newsletters and routine updates.
- Having created the first-ever SCD support group in Australia, our primary objective is to ensure that we have our members supported.
- Join us for routine catch-ups with other families going through similar challenges. We cherish our team activities and we would like you to be on board.
- Have your say and identify gaps affecting people living with sickle cell disease. We are registered in NSW, QLD, SA, VIC and WA.
Support Our Work
- We are a private not for profit organisation raising awareness about Sickle Cell Disease in Australia.
- We are also supporting people affected by this condition considered rare in Australia.
- We do this by providing information and educational materials.
- We are also meeting different multicultural groups to raise awareness.
- We also lobby government to improve services for communities affected by this genetic disorder.
- We are advocating for more scientific research and clinical trials to have curative options for all.
- We are a fully registered charity with a deductible gift recipient certificate.
- Every financial support you give us is Tax deductible.
- Thank you for your support.
Donate Blood
- Sickle Cell Disease is mainly treated by targeting the symptoms or complications that come with living with this disease.
- With pharmaceutical treatment only limited to one drug at the moment in Australia, blood transfusion is one the most successful treatment options to manage this disease.
- Regular blood transfusions or routine red cell exchange can only become possible with the help from blood donors.
- Support people living with Sickle Cell Disease by donating blood.
- With every blood donation, you are saving three lives.
- Make an appointment to donate today.
- Follow the link below.
- Thank you for your support.
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