Sickle Cell Disease Awareness
Sickle Cell Disease Awareness
For information regarding cOVID-19 Email us on covid19@aussicklecelladvocacy.org
ASCA Is On a Mission To Be The Leading Advocacy Organisation For People Affected By Sickle Cell Disease Within Australia And Beyond.
Community outreach
ASCA will provide community sickle cell disease awareness information sessions to different multicultural communities. This outreach program will be beneficial for at-risk communities. Information sessions will also be provided to different educational institutions like TAFE / Colleges / Universities. These sessions will be targeting Nursing and Medical Students so that they have an understanding SCD.
Peer to peer support programs
These programs are similar to family support networks, however, they are specifically for people with SCD. These programs will be run by ASCA with the help of treating hospitals to give an opportunity for people affected to engage one on one or between different ages and tackle issues that only people that are affected go through. Strict policies/ procedures and Insurance will be in place.
Provide resources and information
ASCA has partnered with international organisations to bring advanced resources and information on sickle cell disease. With the permission of different hospitals, ASCA will provide printed materials to hand out to patients / clinicians for easy understanding of this condition. Information will be very beneficial for remote hospitals / centers as this disease is considered rare in Australia.
Family Support Networks
These ASCA funded programs will allow families affected to share life with people going through similar situations. These will be quarterly informal meetings between different people affected sharing snacks / drinks while discussing issues affecting these community of people. Programs commence in late August 2019.
Sickle Cell Disease Awareness
ASCA will continue to highlight the existence of SCD in Australia. Our aim is for everyone from risk areas to get tested for them to know if they have the sickle cell trait. Knowing the sickle cell status will help make proactive decisons
Advocate for Scientific research
Currently SCD is considered a rare disease in Australia and as such there are no known scientific research programs running as there are no funds directed to this disease. Hence ASCA will continue reaching out to Australian Research Scientists to start researching other curative / management options for SCD.
For information regarding cOVID-19 Email us on covid19@aussicklecelladvocacy.org
Support Our Cause
Become a Member
Become an ASCA member to get all the latest information on Sickle Cell Disease and you will be the voice for people with affected. We will send you at least quarterly newsletters and routine updates. Our Membership is free. You get to join us for the annual general meeting. We love our members to get involved in what we do. Our support networks is the number one objective for us and it can only be possible with your support. So get on board today.
Support Our Work
We are a private not for profit organisation raising awareness about Sickle Cell Disease in Australia. We are also supporting people affected by this condition considered rare in Australia. We do this by providing information and educational materials. We are also meeting different multicultural groups to raise awareness. We also lobby government to improve services for communities affected by the genetic disorder. Unfortunately with all the work we do, most it has been self funded by the Founders of this organisation. Over time it has become imperative that we ask for support. We are now a fully registered charity with a deductible gift recipient certificate. We ask for your financial support to enhance our work. Every financial support you give us is Tax deductible. Thank you for your support.
Donate Blood
Sickle Cell Disease is mainly treated by targeting the symptoms or complications that come with living with this disease. Regular blood transfusions or routine red cell exchange are number one SCD management. Support people living with SCD by donating blood. Make an appointment to donate today.
