Australian Sickle Cell Advocacy Inc (ASCA) is a not-for-profit organisation supporting people living with sickle cell disease (SCD) in Australia. It is Australia’s first Sickle Cell Advocacy group advocating for the rights of those living with Sickle Cell Disease in Australia as well as the peak body in Australia looking out for people affected by this disease. ASCA started in 2014 and formally registered in October 2018. Our head office is based in Melbourne with chapters or representatives in other States or Territories across Australia.
Our Services
Community Outreach
ASCA will provide community sickle cell disease awareness information sessions to different multicultural communities. This outreach program will be beneficial for at-risk communities. Information sessions will also be provided to different educational institutions like TAFE / Colleges / Universities. These sessions will be targeting Nursing and Medical Students so that they have an understanding SCD.
Family Support Networks
These ASCA funded programs will allow families affected to share life with people going through similar situations. These will be quarterly informal meetings between different people affected sharing snacks / drinks while discussing issues affecting these community of people. Programs commence in late August 2019.
Peer to Peer Support Programs
These programs are similar to family support networks, however, they are specifically for people with SCD. These programs will be run by ASCA with the help of treating hospitals to give an opportunity for people affected to engage one on one or between different ages and tackle issues that only people that are affected go through. Strict policies/ procedures and Insurance will be in place.
Sickle Cell Disease Awareness
ASCA will continue to highlight the existence of SCD in Australia. Our aim is for everyone from risk areas to get tested for them to know if they have the sickle cell trait. Knowing the sickle cell status will help make proactive decisons.
Provide Resources and Information
ASCA has partnered with international organisations to bring advanced resources and information on sickle cell disease. With the permission of different hospitals, ASCA will provide printed materials to hand out to patients / clinicians for easy understanding of this condition. Information will be very beneficial for remote hospitals / centers as this disease is considered rare in Australia.
Advocate for Scientific Research
Currently SCD is considered a rare disease in Australia and as such there are no known scientific research programs running as there are no funds directed to this disease. Hence ASCA will continue reaching out to Australian Research Scientists to start researching other curative / management options for SCD.
ASCA Events
A community event to support Zambians in Australia and New Zealand
Sickle Cell and Mental Health
The Cornerstone of Physical and Business SuccessAustralian Sickle Cell Advocacy Inc is proud to support The Inaugural Conference of Zambians in Australia and New Zealand. This will be the first-ever event bringing Zambians in Australia and New Zealand together to network and learn more about different areas of life.ASCA is particularly interested to offer support around understanding Sickle Cell Disease. Different scholars have indicated that sickle cell disease predominantly affects people in the Sub Saharan Africa. Zambia is part of this region, and it gives us honour to support the hosting organisation Zambian Association in Victoria.For our participation, we will be providing information on having the sickle cell trait and likelihood of having sickle cell disease.We will provide relevant information and resources to all conference attendees and highlight how they can get tested to know their sickle cell status.The main theme for this conference also encompasses dealing with our mental health as a cornerstone to physical and business success.Dealing with our mental health to manage sickle cell disease has been one of our major objectives. It’s only by managing our mind will we fully succeed to physical healing.We will showcase how sickle cell warriors an succeed in life and enjoy the fruits of different business acumen as they manage their physical and mental health.This will be a two-day event with invited leading speakers from different backgrounds who will highlight the importance of having a different mindset in dealing with business strategies to succeed while being mindful of having a great physical and mental health.Don’t forget to save the date and join us to continue shining the light on Sickle Cell Disease in Australia and beyond.To express interest as a speaker or participant, contact us via this link.
Support Our Cause
Become a Member
- Become an ASCA member to get all the latest information on Sickle Cell Disease in Australia and other parts of the world.
- You will be the voice for people affected by this condition by having a say through your voting rights at our general meeting.
- Get the latest news and updates through our quarterly newsletters and routine updates.
- Having created the first-ever SCD support group in Australia, our primary objective is to ensure that we have our members supported.
- Join us for routine catch-ups with other families going through similar challenges. We cherish our team activities and we would like you to be on board.
- Have your say and identify gaps affecting people living with sickle cell disease. We are registered in NSW, QLD, SA, VIC and WA.
Support Our Work
- We are a private not for profit organisation raising awareness about Sickle Cell Disease in Australia.
- We are also supporting people affected by this condition considered rare in Australia.
- We do this by providing information and educational materials.
- We are also meeting different multicultural groups to raise awareness.
- We also lobby government to improve services for communities affected by this genetic disorder.
- We are advocating for more scientific research and clinical trials to have curative options for all.
- We are a fully registered charity with a deductible gift recipient certificate.
- Every financial support you give us is Tax deductible.
- Thank you for your support.
Donate Blood
- Sickle Cell Disease is mainly treated by targeting the symptoms or complications that come with living with this disease.
- With pharmaceutical treatment only limited to one drug at the moment in Australia, blood transfusion is one the most successful treatment options to manage this disease.
- Regular blood transfusions or routine red cell exchange can only become possible with the help from blood donors.
- Support people living with Sickle Cell Disease by donating blood.
- With every blood donation, you are saving three lives.
- Make an appointment to donate today.
- Follow the link below.
- Thank you for your support.
Recognised by the Federal Minister for Health
Hon Greg Hunt September 2020 SCD Message
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Make A Donation
ASCA is Australia’s first Sickle Cell Advocacy group advocating for the rights of those living with Sickle Cell Disease in Australia. Your donation will advance services for those living with this disease and their families. We thank you for your support.
We are a registered charity with a deductible gift recipient certificate (DGR Status). Sickle Cell Disease affects different multicultural groups and is considered a rare disease in Australia.
Sponsors & Supporters
