Sickle Cell Disease Awareness
Sickle Cell Disease Awareness
For information regarding cOVID-19 Email us on covid19@aussicklecelladvocacy.org
ASCA Is On a Mission To Be The Leading Advocacy Organisation For People Affected By Sickle Cell Disease Within Australia And Beyond.
Community outreach
ASCA will provide community sickle cell disease awareness information sessions to different multicultural communities. This outreach program will be beneficial for at-risk communities. Information sessions will also be provided to different educational institutions like TAFE / Colleges / Universities. These sessions will be targeting Nursing and Medical Students so that they have an understanding SCD.
Peer to peer support programs
These programs are similar to family support networks, however, they are specifically for people with SCD. These programs will be run by ASCA with the help of treating hospitals to give an opportunity for people affected to engage one on one or between different ages and tackle issues that only people that are affected go through. Strict policies/ procedures and Insurance will be in place.
Provide resources and information
ASCA has partnered with international organisations to bring advanced resources and information on sickle cell disease. With the permission of different hospitals, ASCA will provide printed materials to hand out to patients / clinicians for easy understanding of this condition. Information will be very beneficial for remote hospitals / centers as this disease is considered rare in Australia.
Family Support Networks
These ASCA funded programs will allow families affected to share life with people going through similar situations. These will be quarterly informal meetings between different people affected sharing snacks / drinks while discussing issues affecting these community of people. Programs commence in late August 2019.
Sickle Cell Disease Awareness
ASCA will continue to highlight the existence of SCD in Australia. Our aim is for everyone from risk areas to get tested for them to know if they have the sickle cell trait. Knowing the sickle cell status will help make proactive decisons
Advocate for Scientific research
Currently SCD is considered a rare disease in Australia and as such there are no known scientific research programs running as there are no funds directed to this disease. Hence ASCA will continue reaching out to Australian Research Scientists to start researching other curative / management options for SCD.
For information regarding cOVID-19 Email us on covid19@aussicklecelladvocacy.org
Support Our Cause
Become a Member
Become an ASCA member to get all the latest information on Sickle Cell Disease and you will be the voice for people with SCD. Our Membership is free. Get in touch with us to find out more
Donate Blood
Regular blood transfusions or routine red cell exchange are number one SCD management. Support people living with SCD by donating blood. Make an appointment to donate blood today.
Partner with Us
We invite various Medical Professionals to partner with us. Community groups, individuals and companies to help us improve the quality of life of people affected by sickle cell disease.
